Besides difficulties trying on pants, there are a lot of other “small” difficulties that come with having a disability. Another one for me, that developed later in my life, is having swollen limbs. If I sit too long at work, or especially on a plane, my feet swell up. If it’s really bad, my legs will swell up all the way to my knees. In its mildest form, my left foot just swells up like a balloon so I always have to have something at work to prop my foot up on so that doesn’t happen. For plane rides, I bought compression socks that I actually need help getting off because they compress your legs that much.
My mom took me for a bunch of tests when this started happening in my teens to make sure it wasn’t something serious or heart-related and thankfully it wasn’t. But it’s definitely a pain, that’s for sure. It doesn’t cause pain at least but it’s led to many a pair of stretched out shoes and when my foot gets super swollen I can definitely feel it, and it makes it really hard to move. When both legs get swollen all the way up to my knees, it makes it almost impossible to stand and walk (as I learned when we landed in Ireland and I couldn’t figure out why I could barely walk).
I’ve gotten so used to dealing with so many of these things, that sometimes I forget all of the ripples that are created by having muscular dystrophy. It’s not just the muscle weakness or the falling or the limp, though those are certainly plenty on their own. There are a lot of other things that happen as a result of my MD that I have to deal with on a day to day basis; that all of us with disabilities have to live with on a day to day basis.
I’m also going to reiterate…don’t use the handicapped stall in the bathroom if you don’t need it. I really don’t want to have to call someone to come get me off the toilet because it was too low and I’m stuck just because you decided you needed more leg room. Thanks.