On Standing

I’m surprised this isn’t a facet of my muscular dystrophy that I’ve covered before: how my legs feel when I’m standing. I thought about it the other night when I was with my friend, watching a band we like play. They were asking the crowd to jump up and down and bounce a lot…two things … More On Standing

On Swollen Limbs

Besides difficulties trying on pants, there are a lot of other “small” difficulties that come with having a disability. Another one for me, that developed later in my life, is having swollen limbs. If I sit too long at work, or especially on a plane, my feet swell up. If it’s really bad, my legs … More On Swollen Limbs

On Assistance Aids

I’ve always been pretty resistant to the use of assistance aids. Not because I think they’re bad or not useful or will draw attention to my disability. I know there are many things out there that I could potentially benefit from and I know many many people already are. A lot of people diagnosed with … More On Assistance Aids

On Good Fortune

I’ve always considered myself to be a rather unlucky person. Most of it stems from being born with a disability and yes, I know that’s not a healthy or positive way to look at being someone born with a disability. Unfortunately though, that’s how I looked at it for most of my life. And then … More On Good Fortune

On Constant Change

There’s been a lot of change going on in my life lately. With life, some change is always inevitable, but it seems to have infiltrated every aspect of my life from the personal to work. It’s kind of been the unofficial theme of 2018 really. I’m ok at handling some change. In a lot of … More On Constant Change

On Dealing with a Disability, Mentally & Physically

When people think about disabilities, I think the first thing that comes to mind are usually the physical aspects. The physical effects of having something like MD are without a doubt, extremely trying. With every fall, I’m not sure how much longer my knees are going to hold out. But what can really take a … More On Dealing with a Disability, Mentally & Physically

On Graduation

It’s commencement weekend in my town for the university I both went to and now work for. This weekend means a lot of things: it means I’ll be hearing¬†Pomp and Circumstance¬†a lot. It means all around my house will be a buzz and students walking around in their caps and gowns. It means everyone will … More On Graduation

On Dropping Stuff

When I get angry either at my disability or just about having one in general, I feel two things: 1) The need to vocalize anything and everything I’ve been angry about for the last 3-6 months, and 2) The need to angry tweet at someone. Usually it’s Donald Trump cause he’s almost always done something … More On Dropping Stuff